TRUSTPOLITICS

Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease

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closedDepartment of Health and Social CareOpened 17 December 2025Closed 17 June 2026

Background

We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.

Additional details

We are asking for the Government to make Tofersen available to all who would benefit from treatment. The medication has been proven to extend lifespan, and in some cases stop progression of symptoms. We believe the current situation is unethical.

Where it’s popular

Constituencies with the most signatures on this petition.

Honiton and SidmouthRichard Foord
8
Romsey and Southampton NorthCaroline Nokes
6
East WiltshireDanny Kruger
3
TorbaySteve Darling
3
YeovilAdam Dance
2
BridgendChris Elmore
2
Exmouth and Exeter EastDavid Reed
2
Epsom and EwellHelen Maguire
1
Gillingham and RainhamNaushabah Khan
1
HuntingdonBen Obese-Jecty
1
Islington NorthJeremy Corbyn
1
Kingswinford and South StaffordshireMike Wood
1
Leeds SouthHilary Benn
1
LincolnMr Hamish Falconer
1
Luton South and South BedfordshireRachel Hopkins
1
Mid BuckinghamshireGreg Smith
1
Morecambe and LunesdaleLizzi Collinge
1
New Forest WestSir Desmond Swayne
1
Newcastle upon Tyne NorthCatherine McKinnell
1
North CotswoldsSir Geoffrey Clifton-Brown
1

Source: UK Government & Parliament Petitions service. Petition ID: 750887.