Fund research into PANS/PANDAS to provide better care and diagnosis

Background

We urge the government to fund research into PANS/PANDAS which can help to support clear, evidence-informed clinical guidance to help healthcare professionals identify, assess, and manage these conditions appropriately. EVERY child deserves timely diagnosis, treatment, and the chance to thrive.

Additional details

These conditions can cause a rapid and devastating change in a child’s cognitive, emotional, behavioural, and physical functioning. Despite the serious impact these symptoms can have, recognition, diagnosis, and access to specialist care remains inconsistent and there is a lack of research available. Families can face significant barriers to obtaining timely assessment, information, and appropriate treatment, leaving many feeling isolated and unsupported.

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