Written Question·Department of Health and Social Care·UIN 38487
Cerliponase Alfa
Tabled: 14 March 2025
Answered: 26 March 2025
Question
Sally Jameson
Labour (Co-op) — Doncaster Central
To ask the Secretary of State for Health and Social Care, if he will hold discussions with relevant stakeholders on providing access to Brineura for patients with neuronal ceroid lipofuscinosis type 2 (CLN2).
Answer
Karin SmythThe National Institute for Health and Care Excellence (NICE) is currently developing guidance for the National Health Service on whether cerliponase alfa, also known as Brineura, can be recommended for routine NHS funding, considering real-world evidence ...
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