Written Question·Department of Health and Social Care·UIN 77949

Cerliponase Alfa

Tabled: 16 September 2025

Answered: 14 October 2025

Named Day

Question

Freddie van Mierlo

To ask the Secretary of State for Health and Social Care, what discussions he has had with the National Institute for Health and Care Excellence on securing long term access to cerliponase alfa.

Answer

Dr Zubir Ahmed

Officials in the Department have had a number of discussions with colleagues in the National Institute for Health and Care Excellence (NICE) about the ongoing appraisal of cerliponase alfa (Brineura) for the treatment of neuronal ceroid lipofuscinosis typ...

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