Written Question·Department of Health and Social Care·UIN 679
Congenital Disorder of Glycosylation
Tabled: 18 July 2024
Answered: 25 July 2024
Question
Daisy Cooper
Liberal Democrat — St Albans
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of including a dedicated Congenital Disorders of Glycosylation section in the UK Strategy for Rare Diseases.
Answer
No assessment has been made of the potential merits of including a dedicated section on congenital disorders of glycosylation in the UK Rare Diseases Framework. The framework was published in 2021, and provides a national vision for how to improve the liv...
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