Written Question·Department of Health and Social Care·UIN 680
Congenital Disorder of Glycosylation
Tabled: 18 July 2024
Answered: 25 July 2024
Question
Daisy Cooper
Liberal Democrat — St Albans
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a national patient register for Congenital Disorders of Glycosylation.
Answer
No assessment has been made of the potential merits of establishing a national patient register for congenital disorders of glycosylation. There are no plans in England for a specific registry for this condition. Metabolic patients are included in the Nat...
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