Written Question·Department of Health and Social Care·UIN 24718
Diseases: Diagnosis and Medical Treatments
Tabled: 17 January 2025
Answered: 23 January 2025
Question
Liz Jarvis
Liberal Democrat — Eastleigh
To ask the Secretary of State for Health and Social Care, what steps he is taking to improve (a) diagnosis and (b) treatment pathways for patients with (i) hypermobile Ehlers-Danlos Syndrome, (ii) Postural Orthostatic Tachycardia Syndrome and (iii) Mast C
Answer
The Government is committed to improving the lives of those living with rare diseases, such as hypermobile Ehlers-Danlos syndrome (hEDS) and mast cell activation syndrome. The UK Rare Diseases Framework sets out four priorities, collaboratively developed ...
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