Written Question·Department of Health and Social Care·UIN 95266

Ehlers-danlos Syndrome: Diagnosis

Tabled: 27 November 2025
Answered: 11 December 2025

Question

Cameron Thomas

IndependentTewkesbury

To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure that people with Ehlers-Danlos syndromes are quickly and accurately diagnosed.

Answer

Ashley Dalton
We recognise that doctors can find it challenging to diagnose Ehlers-Danlos syndrome (EDS) because of the wide range and variability of symptoms, and that the most common type, hypermobile EDS, currently has no specific genetic test.Resources such as the ...

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