Written Question·Department of Health and Social Care·UIN 33691

Ehlers-Danlos Syndrome: Health Services

Tabled: 25 February 2025
Answered: 5 March 2025

Question

Michael Payne

LabourGedling

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that people with Ehlers-Danlos Syndrome receive adequate medical support.

Answer

Ashley Dalton
The Government is committed to improving the lives of those living with rare diseases, such as Ehlers-Danlos Syndrome (EDS). The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community, which include b...

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