Written Question·Department of Health and Social Care·UIN 95267

Ehlers-danlos Syndrome: Health Services

Tabled: 27 November 2025
Answered: 11 December 2025

Question

Cameron Thomas

IndependentTewkesbury

To ask the Secretary of State for Health and Social Care, what steps he is taking to help improve treatment and specialist care of those with Ehlers-Danlos syndromes.

Answer

Ashley Dalton
We recognise that doctors can find it challenging to diagnose Ehlers-Danlos syndrome (EDS) because of the wide range and variability of symptoms, and that the most common type, hypermobile EDS, currently has no specific genetic test.Resources such as the ...

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