Written Question·Department of Health and Social Care·UIN 98674

Ehlers-Danlos Syndrome: Training

Tabled: 9 December 2025

Answered: 7 January 2026

Question

Gregory Stafford

To ask the Secretary of State for Health and Social Care, what plans her Department has to improve training and clinical awareness of Ehlers–Danlos syndrome among GPs and primary care clinicians to support earlier recognition and referral.

Answer

Ashley Dalton

The Department recognises that Ehlers-Danlos syndromes (EDS) are complex, multi-systemic conditions that can be challenging to diagnose. While no formal assessment of average diagnosis times has been made, the Department is aware that many patients experi...

ⓘ

This is an extract from the Parliament API. Search the full answer on Parliament.uk (UIN 98674) →