Written Question·Department of Health and Social Care·UIN 98669

Ehlers-Danlos Syndrome: Waiting Lists

Tabled: 9 December 2025
Answered: 7 January 2026

Question

Gregory Stafford

ConservativeFarnham and Bordon

To ask the Secretary of State for Health and Social Care, what steps her Department is taking to reduce the time taken for (a) referrals and (b) assessments for Ehlers-Danlos syndrome.

Answer

Ashley Dalton
The Department recognises that Ehlers-Danlos syndromes (EDS) are complex, multi-systemic conditions that can be challenging to diagnose. While no formal assessment of average diagnosis times has been made, the Department is aware that many patients experi...

This is an extract from the Parliament API. Search the full answer on Parliament.uk (UIN 98669) →