Written Question·Department of Health and Social Care·UIN 78543

Ehlers-Danlos Syndrome: Young People

Tabled: 10 October 2025
Answered: 3 November 2025

Question

Lee Anderson

Reform UK — Ashfield

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) support research into and (b) improve healthcare for young people with Ehlers Danlos Syndrome.

Answer

Ashley Dalton
A primary goal of the Complex Ehlers-Danlos Syndrome (EDS) Service, which is commissioned by NHS England, is to educate clinicians about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service foc...
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