Written Question·Department of Health and Social Care·UIN 78786
Ehlers-Danlos Syndrome: Young People
Tabled: 10 October 2025
Answered: 4 November 2025
Question
Matt Vickers
Conservative — Stockton West
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the availability of transition support for young people with Ehlers Danlos Syndrome who are moving from paediatric to adult NHS services.
Answer
Ashley DaltonIntegrated care boards (ICBs) have a statutory responsibility to commission services which meet the needs of their local populations. It is the responsibility of ICBs, working with clinicians, service users, and patient groups, to develop services and car...
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