Written Question·Department of Health and Social Care·UIN 38493
Givinostat
Tabled: 14 March 2025
Answered: 26 March 2025
Question
Dr Neil Shastri-Hurst
Conservative — Solihull West and Shirley
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of delays in accessing givinostat through the Early Access Programme on boys and young men living with Duchenne muscular dystrophy in the UK.
Answer
Karin SmythThe Department understands the impact that Duchenne muscular dystrophy has on those living with it and their families, and the urgent need for new treatment options. The National Institute for Health and Care Excellence (NICE) recently published guidance ...
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