Written Question·Department of Health and Social Care·UIN 38493

Givinostat

Tabled: 14 March 2025
Answered: 26 March 2025

Question

Dr Neil Shastri-Hurst

ConservativeSolihull West and Shirley

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of delays in accessing givinostat through the Early Access Programme on boys and young men living with Duchenne muscular dystrophy in the UK.

Answer

Karin Smyth
The Department understands the impact that Duchenne muscular dystrophy has on those living with it and their families, and the urgent need for new treatment options. The National Institute for Health and Care Excellence (NICE) recently published guidance ...

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