Written Question·Department of Health and Social Care·UIN 87434

Hereditary Diseases

Tabled: 3 November 2025
Answered: 26 November 2025
Named Day

Question

Mr Richard Holden

Conservative — Basildon and Billericay

To ask the Secretary of State for Health and Social Care, whether any NHS trusts (a) collect and (b) are required to collect data on (i) child and infant mortality, (ii) congenital anomalies and (iii) other health outcomes attributable to parental consang

Answer

Dr Zubir Ahmed
The responsibility to collect and report child deaths is held by the commissioning authority and local authorities’ Child Death Overview Panels (CDOPs), not National Health Service trusts. The Child Death Review statutory guidance requires NHS trusts to p...
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