Written Question·Department of Health and Social Care·UIN 94912

Hereditary Diseases

Tabled: 26 November 2025

Answered: 2 December 2025

Named Day

Question

Mr Richard Holden

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 November 2025 to Question 87433 on Hereditary Diseases, which NHS trusts and other data providers are submitting incomplete information on parental consanguinity to the

Answer

Dr Zubir Ahmed

Since assuming responsibility for the registration of congenital and rare conditions in 2015, the National Disease Registration Service (NDRS) has focused on improving the accuracy of case completeness and strengthening regional coverage to monitor trends...

ⓘ

This is an extract from the Parliament API. Search the full answer on Parliament.uk (UIN 94912) →