Written Question·Department of Health and Social Care·UIN 11708
Jordan's Syndrome
Tabled: 29 October 2024
Answered: 5 November 2024
Question
Tom Hayes
Labour — Bournemouth East
To ask the Secretary of State for Health and Social Care, what steps he is taking to improve (a) care and (b) treatment for people with Jordan’s Syndrome.
Answer
The government is committed to improving the lives of those living with rare diseases, such as Jordan’s Syndrome. The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community: these include better coord...
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