Written Question·Department of Health and Social Care·UIN 53047

Medical Treatments and Tofersen

Tabled: 19 May 2025
Answered: 27 May 2025

Question

Jim Shannon

Democratic Unionist Party — Strangford

To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the potential impact of Early Access Programmes on equity of access to (a) tofersen and (b) other innovative treatments.

Answer

Karin Smyth
Early access schemes for unlicenced medicines, where approval may be obtained in other markets, including where a licence exists but a National Institute for Health and Care Excellence decision is not available, are managed by companies to benefit patient...
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