Written Question·Department of Health and Social Care·UIN 99741

Metachromatic Leukodystrophy

Tabled: 15 December 2025

Answered: 7 January 2026

Named Day

Question

Stuart Andrew

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 2 December 2025 to Question 93697, whether he has made an estimate of the number of (a) preventable deaths and (b) cases of irreversible disability in children with Metach

Answer

Ashley Dalton

When evaluating the evidence relating to a health condition such as metachromatic leukodystrophy (MLD), the UK National Screening Committee (UK NSC) considers important issues relating to the condition, the test, the treatment and the effectiveness of a s...

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