Written Question·Department of Health and Social Care·UIN 99743

Metachromatic Leukodystrophy

Tabled: 15 December 2025

Answered: 7 January 2026

Named Day

Question

Stuart Andrew

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 2 December 2025 to Question 93697, if he will meet with representatives of ArchAngel MLD Trust, the MPS Society, MLD Support UK, the LSD Collaborative, and Alex – The Leuk

Answer

Ashley Dalton

My rt. Hon. Friend, the Secretary of State for Health and Social Care, will carefully consider a UK National Screening Committee (UK NSC) recommendation on metachromatic leukodystrophy when it is presented to him, before making a decision. The Secretary o...

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