Written Question·Department of Health and Social Care·UIN 70804

Metachromatic Leukodystrophy: Screening

Tabled: 29 August 2025

Answered: 5 September 2025

Named Day

Question

Dr Rosena Allin-Khan

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of including metachromatic leukodystrophy in the newborn blood spot test.

Answer

Ashley Dalton

The UK National Screening Committee (UK NSC) considered newborn screening for metachromatic leukodystrophy (MLD) in 2023. At that time, it concluded that the available evidence on screening test accuracy and cost-effectiveness, though limited, warranted f...

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