Written Question·Department of Health and Social Care·UIN 78401

Motor Neurone Disease

Tabled: 10 October 2025

Answered: 30 October 2025

Question

Dr Caroline Johnson

Conservative — Sleaford and North Hykeham

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that all individuals with superoxide dismutase-1 motor neuron disease have access to early access programmes for motor neurone disease.

Answer

Dr Zubir Ahmed

The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based recommendations for the National Health Service on whether new medicines represent a clinically and cost-effectiv...

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