Written Question·Department of Health and Social Care·UIN 95283

Motor Neurone Disease: Hampshire

Tabled: 27 November 2025

Answered: 4 December 2025

Named Day

Question

Darren Paffey

To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that patients with the rare genetic form of Motor Neurone Disease within Hampshire have timely access to Tofersen; and what assessment he has made of regional disp

Answer

Dr Zubir Ahmed

The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based recommendations for the National Health Service on whether new medicines represent a clinically and cost-effectiv...

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