Written Question·Department of Health and Social Care·UIN 75475

Motor Neurone Disease: Health Services

Tabled: 5 September 2025

Answered: 25 September 2025

Question

Lorraine Beavers

To ask the Secretary of State for Health and Social Care, what assessment he has made of the extent of regional inequities in the provision of early access programmes for (a) innovative treatments and (b) people living with SOD1 motor neurone disease.

Answer

Dr Zubir Ahmed

Company-led early access programmes (EAPs) are not endorsed by the Department or NHS England and no assessment has been made of whether there are regional inequities in the provision of early access programmes for innovative treatments and people living w...

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