Written Question·Department of Health and Social Care·UIN 20849

Muscular Dystrophy: Health Services

Tabled: 17 December 2024

Answered: 23 December 2024

Question

John Milne

To ask the Secretary of State for Health and Social Care, if he will take steps to ensure that the early access programme for people with Duchennes is made available across all NHS trusts.

Answer

Karin Smyth

Access to the Early Access Programme (EAP) for givinostat must be through one of the 23 NorthStar Centres in the United Kingdom. However, participation in the EAP is decided at an individual National Health Service trust level, and a North Star Centre wil...

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