Written Question·Department of Health and Social Care·UIN 8879
Neurofibromatosis
Tabled: 14 October 2024
Answered: 21 October 2024
Question
Sarah Owen
Labour — Luton North
To ask the Secretary of State for Health and Social Care, whether his Department plans to develop standardised national guidelines for the (a) identification and (b) treatment of neurofibromatosis type 1 (NF1).
Answer
We remain committed to the UK Rare Diseases Framework, which highlights helping patients get a final diagnosis faster, and improved access to specialist care, treatment, and drugs as priorities to improve the lives of people with living with rare diseases...
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