Written Question·Department of Health and Social Care·UIN 34206

Rare Diseases

Tabled: 26 February 2025

Answered: 12 March 2025

Question

Anna Gelderd

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help improve health outcomes for patients with rare diseases, in the context of the recent announcement by NHS Specialised Commissioning on (a) dabrafenib and

Answer

Ashley Dalton

In January 2021, the Government published the UK Rare Diseases Framework providing a national vision for how to improve the lives of those living with rare diseases. The 2025 England Rare Diseases Action Plan was published on 28 February 2025.Dabrafenib a...

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