Written Question·Department of Health and Social Care·UIN 78790
Rare Diseases
Tabled: 10 October 2025
Answered: 20 October 2025
Question
Matt Vickers
Conservative — Stockton West
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that (a) general practitioners and (b) hospital doctors receive training on (i) Ehlers Danlos Syndrome and (ii) other rare conditions.
Answer
Ashley DaltonNHS England commissions a national diagnostic service for complex and rare types of Ehlers-Danlos syndrome (EDS) via two specialist centres. This service supports patients with a suspected or confirmed diagnoses of rare types like classical, vascular, or ...
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