Written Question·Department of Health and Social Care·UIN 81025

Rare Diseases

Tabled: 10 October 2025

Answered: 6 November 2025

Question

Mr Joshua Reynolds

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential impact of the National Institute for Health and Care Excellence not having updated its methods on evaluating the wider societal costs of rar

Answer

Dr Zubir Ahmed

There are no plans to introduce a separate evaluation process for orphan medicines. The National Institute for Health and Care Excellence (NICE) makes recommendations for the National Health Service on whether all new licensed medicines, including medicin...

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