Written Question·Department of Health and Social Care·UIN 89532
Rare Diseases
Tabled: 11 November 2025
Answered: 24 November 2025
Question
Dr Caroline Johnson
Conservative — Sleaford and North Hykeham
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of the rare disease framework.
Answer
Ashley DaltonThe UK Rare Diseases Framework was published following the National Conversation on Rare Diseases, which received nearly 6,300 responses. This helped identify the four priorities of the framework in tackling rare diseases: helping patients get a final dia...
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