Written Question·Department of Health and Social Care·UIN 114966
Rare Diseases
Tabled: 23 February 2026
Answered: 16 March 2026
Named DayQuestion
Nadia Whittome
Labour — Nottingham East
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential impact of the availability of NHS provision on the number of patients with Cranio-Cervical Instability who are seeking (a) diagnosis and (b)
Answer
Ashley DaltonThe Department recognises that Ehlers–Danlos syndromes (EDS) and associated cranio‑cervical instability (CCI) are complex conditions that can be challenging to diagnose and manage, and we acknowledge the concerns raised by patients and clinicians about va...
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