Written Question·Department of Health and Social Care·UIN 119830

Rare Diseases: Children

Tabled: 11 March 2026
Answered: 23 March 2026
Named Day

Question

Mr Gregory Campbell

Democratic Unionist PartyEast Londonderry

To ask the Secretary of State for Health and Social Care, how many children were born with rare diseases as identified by the National Congenital Anomaly and Rare Disease Registration Service in each of the last ten years.

Answer

Mrs Sharon Hodgson
The National Congenital Condition and Rare Disease Registration Service (NCARDRS), part of the National Disease Registration Service (NDRS), was established in 2015 and collects data on individuals with congenital and rare conditions in England. There are...

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Rare Diseases: Children — Written Question | TrustPolitics