Written Question·Department of Health and Social Care·UIN 18897

Rare Diseases: Diagnosis

Tabled: 10 December 2024
Answered: 16 December 2024

Question

Mr Gregory Campbell

Democratic Unionist Party — East Londonderry

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential impact of the UK Rare Diseases Framework, published on 9 January 2021, on reducing the time it takes to diagnose rare diseases.

Answer

The Government is committed to improving the lives of those living with rare diseases. The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community, including helping patients get a final diagnosis fast...
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