Written Question·Department of Health and Social Care·UIN 69240
Rare Diseases: Drugs
Tabled: 21 July 2025
Answered: 1 September 2025
Question
Jim Shannon
Democratic Unionist Party — Strangford
To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that the (a) pricing and (b) reimbursement system for multi-indication medicines is adequate for patients with (i) rare and (ii) ultra-rare conditions.
Answer
Karin SmythIndication-specific pricing can support access to treatments, including for rare conditions, by enabling companies to propose a specific price for smaller indications that would otherwise be commercially unviable under a uniform price.In January 2025, fol...
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