Written Question·Department of Health and Social Care·UIN 83673

Rare Diseases: Drugs

Tabled: 20 October 2025
Answered: 21 November 2025

Question

John Milne

Liberal DemocratHorsham

To ask the Secretary of State for Health and Social Care, if his Department will include a target in a future Rare Disease Action Plan on proportionate access to multi-indication medicines for (a) rare and (b) ultra-rare disease patients.

Answer

Ashley Dalton
Improving access to specialist care, treatments, and drugs is a priority under the UK Rare Diseases Framework. The 2025 England Rare Diseases Action Plan was published in February 2025 and reports on progress against existing actions under this priority. ...

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