Written Question·Department of Health and Social Care·UIN 94610

Rare Diseases: Drugs

Tabled: 25 November 2025

Answered: 1 December 2025

Question

Mr Joshua Reynolds

To ask the Secretary of State for Health and Social Care, what steps his Department is taking in response to research by the UK BioIndustry Association published on 6 November 2025 showing that around half of rare disease medicines approved by the Europea

Answer

Dr Zubir Ahmed

The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based recommendations for the National Health Service on whether new medicines represent a clinically and cost-effectiv...

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