Written Question·Department of Health and Social Care·UIN 94611

Rare Diseases: Drugs

Tabled: 25 November 2025
Answered: 1 December 2025

Question

Mr Joshua Reynolds

Liberal DemocratMaidenhead

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the suitability of the National Institute for Health and Care Excellence’s approach to evaluating the cost-effectiveness of rare disease medicines.

Answer

Dr Zubir Ahmed
The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing authoritative, evidence-based recommendations for the National Health Service on whether new medicines represent a clinically and cost-effectiv...

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