Written Question·Department of Health and Social Care·UIN 8647
Rare Diseases: Health Services
Tabled: 11 October 2024
Answered: 21 October 2024
Question
Peter Dowd
Labour — Bootle
To ask the Secretary of State for Health and Social Care, what assessment he has made of the progress of work under the UK Rare Diseases Framework; and what steps his Department plans to take to ensure that rare disease continues to be a health priority.
Answer
A rare disease is defined as a disease or condition which affects fewer than one in 2,000 people within the general population. While they are individually rare, they are collectively common, and one in 17 people will be affected by a rare disease at some...
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