Written Question·Department of Health and Social Care·UIN 24175
Rare Diseases: Health Services
Tabled: 15 January 2025
Answered: 23 January 2025
Named DayQuestion
Jim Shannon
Democratic Unionist Party — Strangford
To ask the Secretary of State for Health and Social Care, what plans his Department has to improve patient care for (a) primary biliary cholangitis and (b) other non-genetic rare diseases.
Answer
The Government is committed to improving the lives of those living with rare diseases, including non-genetic rare diseases such as primary biliary cholangitis. The UK Rare Diseases Framework sets out four priorities, collaboratively developed with the rar...
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