Written Question·Department of Health and Social Care·UIN 90379
Rare Diseases: Health Services
Tabled: 12 November 2025
Answered: 24 November 2025
Question
Dr Luke Evans
Conservative — Hinckley and Bosworth
To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of implementing a new (a) strategy and (b) framework to replace the UK Rare Diseases Framework.
Answer
Ashley DaltonThe UK Rare Diseases Framework was published following the National Conversation on Rare Diseases, which received nearly 6,300 responses. This helped identify the four priorities of the framework in tackling rare diseases, which are: helping patients get ...
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