Written Question·Department of Health and Social Care·UIN 93292
Rare Diseases: Health Services
Tabled: 20 November 2025
Answered: 25 November 2025
Named DayQuestion
Helen Morgan
Liberal Democrat — North Shropshire
To ask the Secretary of State for Health and Social Care, if he will publish a timeline for refreshing the UK Rare Diseases Framework.
Answer
Ashley DaltonPatient voice is an underpinning theme of the UK Rare Diseases Framework, and we are committed to ensuring that the patient voice is a key driver of the action plans published under this framework. The UK Rare Diseases Framework was published following th...
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