Written Question·Department of Health and Social Care·UIN 108764
Rare Diseases: Health Services
Tabled: 27 January 2026
Answered: 30 January 2026
Question
Anneliese Dodds
Labour (Co-op) — Oxford East
To ask the Secretary of State for Health and Social Care, in regard to the upcoming closure of the the UK Rare Diseases Framework, what alternative evaluation methods will be used to assess and ensure the continued improvement of access to specialist care
Answer
Ashley DaltonThe UK Rare Diseases Framework was published following the National Conversation on Rare Diseases, which received nearly 6,300 responses. This helped identify the four priorities of the framework in tackling rare diseases: helping patients get a final dia...
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