Written Question·Department of Health and Social Care·UIN 12498

Rare Diseases: Medical Treatments

Tabled: 4 November 2024
Answered: 11 November 2024

Question

Steve Darling

Liberal DemocratTorbay

To ask the Secretary of State for Health and Social Care, what recent discussions his Department has had with NICE on reducing the time taken for patients to access treatment for very rare diseases in cases when there is uncertainty on the (a) incidence a

Answer

Karin Smyth
The Department has regular discussions with the National Institute for Health and Care Excellence (NICE) about a range of issues, including in relation to timelines for appraisals. The NICE aims to issue draft guidance on new medicines, including for rare...

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