Written Question·Department of Health and Social Care·UIN 24991
Rare Diseases: Medical Treatments
Tabled: 20 January 2025
Answered: 23 January 2025
Named DayQuestion
Steve Darling
Liberal Democrat — Torbay
To ask the Secretary of State for Health and Social Care, what discussions his Department has had with NICE on ensuring that patient access to treatment for very rare diseases is not delayed in circumstances where there is uncertainty on the incidence and
Answer
Karin SmythThe Department has regular discussions with the National Institute for Health and Care Excellence (NICE) about a range of issues, including the criteria for routing topics to the Highly Specialised Technologies (HST) programme.Decisions on whether medicin...
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