Written Question·Department of Health and Social Care·UIN 60244

Rare Diseases: Medical Treatments

Tabled: 16 June 2025

Answered: 20 June 2025

Question

Amanda Hack

To ask the Secretary of State for Health and Social Care, what discussions he has had with NICE on considering the potential impact of improved carer wellbeing on the economy in its assessments of the effectiveness of treatments for rare diseases.

Answer

Karin Smyth

In making its recommendations on new medicines, the National Institute for Health and Care Excellence (NICE) takes into account all health-related costs and benefits, including health benefits to carers. It does not, however, take into account wider socie...

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