Written Question·Department of Health and Social Care·UIN 60246
Rare Diseases: Medical Treatments
Tabled: 16 June 2025
Answered: 20 June 2025
Question
Amanda Hack
Labour — North West Leicestershire
To ask the Secretary of State for Health and Social Care, what discussions he has had with NICE on feedback from stakeholders on how the impacts on carers are considered in appraisals for rare and ultra-rare conditions.
Answer
Karin SmythIn making its recommendations on new medicines, the National Institute for Health and Care Excellence (NICE) takes into account all health-related costs and benefits, including health benefits to carers. It does not, however, take into account wider socie...
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