Written Question·Department of Health and Social Care·UIN 71789

Rare Diseases: Medical Treatments

Tabled: 29 August 2025

Answered: 9 September 2025

Question

Mr Angus MacDonald

Liberal Democrat — Inverness, Skye and West Ross-shire

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of developing new NICE criteria for rare conditions that do not meet the 300 patient threshold for the Highly Specialised Technology appraisal sy

Answer

Karin Smyth

Decisions on whether medicines should be evaluated through the National Institute for Health and Care Excellence’s (NICE) highly specialised technologies (HST) programme are taken by NICE itself against a set of published criteria that have been developed...

ⓘ

This is an extract from the Parliament API. Search the full answer on Parliament.uk (UIN 71789) →