Written Question·Department of Health and Social Care·UIN 86757
Rare Diseases: Medical Treatments
Tabled: 30 October 2025
Answered: 10 November 2025
Question
Claire Hanna
Social Democratic & Labour Party — Belfast South and Mid Down
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of appraisal processes for (a) Freidrich’s Ataxia, (b) Neiman Pick’s disease and (c) other rare diseases for exceptional conditions.
Answer
Dr Zubir AhmedThe National Institute for Health and Care Excellence’s (NICE) methods have been proven to be suitable for the evaluation of rare disease medicines, where companies are willing to price their medicines fairly. NICE’s approval rate for medicines for rare d...
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