Written Question·Department of Health and Social Care·UIN 108765
Rare Diseases: Medical Treatments
Tabled: 27 January 2026
Answered: 3 February 2026
Question
Anneliese Dodds
Labour (Co-op) — Oxford East
To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the National Institute for Health and Care Excellence (NICE)'s current Highly Specialised Technologies Guidance, specifically where it does not recomm
Answer
Dr Zubir AhmedThe National Institute for Health and Care Excellence (NICE) operates a separate Highly Specialised Technologies (HST) programme to evaluate a very small number of medicines and treatments developed for ultra‑rare, severe and life‑limiting conditions. It ...
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